Quality Of Care And Risk Of Relapse In Porphyria Cutanea Tarda: A Study From The Norwegian Porphyria Registry

This study from the Norwegian Porphyria Registry included 359 patients with porphyria cutanea tarda (PCT) and aimed to assess the risk of relapse and the effectiveness of yearly follow-ups. The study found that 25% of patients experienced a biochemical relapse, indicated by increased urinary porphyrin concentrations, more than 3 years after diagnosis. This suggests that routine follow-up is beneficial for identifying patients who may need closer monitoring or treatment. The study highlights the importance of regular monitoring to manage PCT effectively.