The Diverse Experiences and Challenges of Individuals With Alopecia Areata: Survey Results From Finland

    June 2025 in “ Journal of Patient Experience
    Johanna Mandelin, Laura Rehn, Mikko Kosunen, Merja Väkeväinen, Saara Rannanpää
    TLDR Alopecia areata greatly affects quality of life, with many experiencing mental health issues and lacking professional support.
    This study surveyed 226 individuals in Finland with alopecia areata (AA) to understand their experiences and challenges. The majority (82.7%) had at least one comorbid condition, such as atopic dermatitis or allergic rhinitis, and many reported depression (22.1%) or anxiety (23.0%). Those with ≥50% hair loss experienced more negative impacts on well-being, relationships, and social situations. Despite these challenges, 82.7% had not received treatment in the past year, and many were dissatisfied with available options. Financial burdens, particularly for wigs, were significant. The findings emphasize the need for better treatment options, patient education, and professional support to improve the well-being of individuals with AA.
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