Listening to Patients: A Qualitative Study on Diagnostic Delay, Coping Strategies, and Stigma in Early-Onset Colorectal Cancer

    October 2025 in “ Colorectal Disease
    Hélène Gros, Stephanie Taha‐Mehlitz, Suna Erdem, Mathias Worni, Mark Henschel, Amanda K. Huber, J.‐M. Gass, A F Muller, C. T. Viehl, Raffaele Galli, Daniel Rodjakovic, Thomas Simon, Sebastian Happ, Sofia Teixeira da Cunha, Lukas Eisner, Daniel C. Steinemann, Beat P. Müller‐Stich, M. Strauß, Jennifer M. Klasen
    TLDR Early-onset colorectal cancer requires better physician awareness, risk-based screening, and stigma reduction to improve patient experiences.
    This study on early-onset colorectal cancer (EOCC) involved participants aged 30 to 50 and identified three main themes: diagnostic delay, coping mechanisms, and stigmatisation. Despite a well-resourced healthcare system, diagnostic delays were common, highlighting the need for increased physician awareness and improved risk-based screening. Key coping strategies included self-advocacy and involvement in medical decisions, such as prioritizing fertility preservation. Participants feared stigma and isolation, particularly concerning alopecia and living with an ostomy. The study concludes that EOCC challenges current clinical practices, necessitating better physician awareness, risk-based screening, integrated treatment discussions, and efforts to address stigma to improve patient experiences.
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