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TikTok videos show that people with Lupus often discuss symptoms and their significant impact on mental health, face diagnostic delays, have mixed views on treatments, and feel isolated despite support.

A 61-year-old Filipino man had a skin condition that looked like another disease, making diagnosis difficult.

Non-scarring hair loss in lupus patients often responds well to treatment and doesn't lead to scarring.

Lupus patients on TikTok feel isolated, face medical gaslighting, and prefer non-drug treatments.

A 22-year-old with multiple autoimmune diseases needs a multidisciplinary treatment approach.

Lupus can cause a type of hair loss that doesn't scar, due to inflammation.

Two patients with lupus had an unusual type of hair loss not typical for the disease.

Cutaneous lupus erythematosus is a common skin condition in lupus, affecting mostly young adult females.

LC-OCT can help identify lupus-related scarring hair loss by spotting unique features.

Tph cells are linked to the severity of systemic lupus erythematosus.

COVID-19 vaccination may trigger lupus in some people.

SLE is more common among Nigerians than previously thought, especially in women, requiring early treatment.

Lupus can affect the scalp and nails, often causing hair loss and nail damage, and needs early aggressive treatment to prevent permanent damage.

Hair loss in lupus patients indicates higher disease activity.

PUVA treatment may have triggered lupus in a woman with psoriasis.

Cutaneous lupus erythematosus is a chronic skin disease that can progress to systemic lupus in some cases and requires treatment to prevent recurrences and scarring.

SLE patients in eastern Saudi Arabia have a generally good prognosis despite multi-organ involvement.

Damage to hair follicle stem cells causes permanent hair loss and scarring in cutaneous lupus erythematosus.

Hair loss in lupus is different from hair loss in alopecia areata and may indicate lupus activity.

Most patients with Systemic Lupus Erythematosus experience fatigue, skin issues, and joint pain.

Black patients with discoid lupus erythematosus have more severe skin damage and higher chances of dyspigmentation, scalp, and ear involvement.

Lupus can cause hair loss and nail changes, with treatments available for both.

Plucked hair follicles can help diagnose scalp lupus.

SLE patients with Evans syndrome often show blood issues and need careful monitoring and treatment.

Hair loss in systemic lupus erythematosus patients is unique and improves with treatment.

Lenalidomide effectively and safely treats skin symptoms in pediatric lupus, reducing the need for prednisone.

Most children with childhood-onset lupus in Baghdad responded well to treatment, but some developed chronic kidney disease or died.

Early treatment with the right dose of stem cells can reduce lupus symptoms.

A patient had both chronic cutaneous lupus erythematosus and frontal fibrosing alopecia.

Both patients and physicians are often dissatisfied with the control of systemic lupus erythematosus and lupus nephritis.