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    GlossaryEpidermolysis Bullosa

    genetic disorder causing extremely fragile, blister-prone skin

    Epidermolysis Bullosa (EB) is a group of rare genetic disorders that cause the skin to be extremely fragile, leading to blistering and tearing from minor friction or trauma. This condition can range from mild to severe, affecting not only the skin but also mucous membranes and internal organs in some cases.

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      community scarring alopecia awareness in this community

      in Chat  33 upvotes 3 years ago
      Lichen Planopilaris (LPP), a form of permanent hair loss, which can be mistaken for seborrheic dermatitis and is characterized by scalp itching, burning, redness, and dandruff. Treatment options discussed include steroidal creams, finasteride, minoxidil, and RU58841.

      community My skin is always dry and flakes like chalk (25)

      in Transgender  6 upvotes 1 year ago
      The user underwent a biopsy two years ago and was diagnosed with keratosis pilaris, leading to hair issues. They tried treatments including Minoxidil, betamethasone, lymecycline, topical Accutane, and dutasteride, as well as diet changes, without improvement in hair thickness or skin dryness.

      community The Worst Hair Loss Condition You (MAY) have: LPP

      in Research/Science  52 upvotes 1 year ago
      Lichen Planopilaris (LPP) is an autoimmune condition causing permanent hair loss and fibrosis, often misdiagnosed. Treatments include pioglitazone, topical corticosteroids, anti-inflammatory medication, and Jak inhibitors.

      community Betamethasone dipropionate 0.05 (sernivo spray)

      in General  76 upvotes 11 months ago
      A user was prescribed betamethasone dipropionate spray for a receding hairline, which caused skin peeling and depigmentation. They stopped using it and are considering alternatives like BPC-157/TB-500 for healing.