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Did you mean Patient-Reported Outcome Measures?

GlossaryPatient-Reported Outcome Measures

tools for patients to report their health and treatment outcomes

Patient-Reported Outcome Measures (PROMs) are tools used to gather information directly from patients about their health status, quality of life, and the effectiveness of treatments from their perspective. These measures are crucial in both clinical practice and research as they provide insights into how patients feel and function, which can help guide treatment decisions and improve healthcare outcomes.

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Patient-Reported Hair Loss and Its Impacts as Measured by the Alopecia Areata Patient Priority Outcomes Instrument in Patients Treated with Ritlecitinib: The Allegro Phase 2b/3 Randomized Clinical Trial

research Patient-Reported Hair Loss and Its Impacts as Measured by the Alopecia Areata Patient Priority Outcomes Instrument in Patients Treated with Ritlecitinib: The ALLEGRO Phase 2b/3 Randomized Clinical Trial

4 citations , October 2024 in “American Journal of Clinical Dermatology”

Ritlecitinib improved hair regrowth and emotional well-being in some alopecia areata patients.

research Outcome measure instruments for the assessment and treatment of androgenetic alopecia: A scoping review

June 2026 in “Clinical and Experimental Dermatology”

Standardized assessment tools for androgenetic alopecia are needed.

research Development of the Alopecia Areata Patient Priority Outcomes Instrument: A Qualitative Study

11 citations , March 2021 in “Dermatology and therapy”

Researchers created a new tool to measure the effects of alopecia areata from the patient's view, focusing on hair loss, daily life, and emotional health.

research An Evaluation of Generic and Disease‐Specific Patient‐Reported Outcome Measures to Assess the Impact of Percentage of Scalp Hair Loss on Health‐Related Quality of Life in a European Population

1 citations , January 2025 in “JEADV Clinical Practice”

Disease-specific tools better assess alopecia areata's impact on quality of life.

research PSS21 GAP ANALYSIS FOR PATIENT-REPORTED OUTCOMES MEASURES FOR ALOPECIA

May 2011 in “Value in Health”

No current patient-reported outcome measure fully meets FDA requirements for alopecia treatments.

research Content validity of five single‐item instruments in adolescents with alopecia areata

1 citations , May 2022 in “British Journal of Dermatology”

The instruments are valid but don't fully capture the emotional impact on adolescents with alopecia areata.

Development of Clinician-Reported Outcome and Patient-Reported Outcome Measures for Eyebrow, Eyelash, and Nail Assessment in Alopecia Areata

research Development of Clinician-Reported Outcome (ClinRO) and Patient-Reported Outcome (PRO) Measures for Eyebrow, Eyelash and Nail Assessment in Alopecia Areata

56 citations , August 2020 in “American Journal of Clinical Dermatology”

New tools help assess eyebrow, eyelash, and nail changes in Alopecia Areata, improving understanding of patient experiences.

Choice of Recall Period for Patient-Reported Outcome Measures: Criteria for Consideration

research Choice of recall period for patient-reported outcome (PRO) measures: criteria for consideration

82 citations , September 2011 in “Quality of Life Research”

Choosing the right recall period for patient feedback is important for accurate data and depends on the disease, symptom changes, and patient impact.

research Development and validation of a patient‐reported outcome measure for hair loss treatment: The HAIR‐Q

2 citations , July 2024 in “Journal of Cosmetic Dermatology”

The HAIR-Q is a reliable tool for assessing patient satisfaction with hair loss treatments.

research Generic vs. Disease-Specific Patient Reported Outcome (PRO) Instruments for Assessing HRQoL Burden Among Patients Diagnosed with Alopecia Areata: Evidence from TARGET-DERM AA

November 2024 in “SKIN The Journal of Cutaneous Medicine”

Disease-specific tools better assess quality of life in alopecia areata patients.

research Objective outcome measures: Collecting meaningful data on alopecia areata

39 citations , November 2017 in “Journal of The American Academy of Dermatology”

The document suggests using standardized methods to track and measure hair loss in alopecia areata, including patient self-assessment and a 50% improvement in specific scores as a treatment goal.

research Patient experience in systemic lupus erythematosus: development of novel patient-reported symptom and patient-reported impact measures

9 citations , February 2018 in “Journal of Patient-Reported Outcomes”

New tools were created to help lupus patients report their symptoms and impacts more accurately.

Validation of the Alopecia Areata Patient Priority Outcomes Questionnaire in Adults and Adolescents with Alopecia Areata

research Validation of the Alopecia Areata Patient Priority Outcomes (AAPPO) Questionnaire in Adults and Adolescents with Alopecia Areata

22 citations , November 2021 in “Dermatology and Therapy”

The AAPPO questionnaire is a reliable tool for assessing hair loss impact in alopecia areata patients.

Patient Prioritization of Items to Develop the Patient-Reported Impact of Dermatological Diseases Measure: A Global Delphi Study

research Patient prioritisation of items to develop the Patient‐Reported Impact of Dermatological Diseases measure: A global Delphi study

2 citations , February 2024 in “Journal of the European Academy of Dermatology and Venereology”

The study created a 27-item measure to assess the impact of skin diseases.

research The Spectrum of Health Domains Important to Lupus Patients Early Development of a Disease Activity Patient Reported Outcome.

2 citations , March 2019 in “PubMed”

A new tool helps lupus patients and doctors better track symptoms and quality of life.

research Validation of the Cutaneous Lupus Disease Area and Severity Index (CLASI) using physician- and patient-assessed health outcome measures

40 citations , October 2012 in “Journal of the American Academy of Dermatology”

CLASI is a valid tool for assessing skin activity and damage in lupus patients.

research A Systematic Review of 207 Studies Describing Validation Aspects of the Dermatology Life Quality Index

8 citations , November 2024 in “Acta Dermato Venereologica”

The Dermatology Life Quality Index is reliable and consistent but needs more diverse participant studies.

Quality of Life Measurement in Alopecia Areata: Position Statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient-Oriented Outcomes

research Quality of life measurement in alopecia areata. Position statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient Oriented Outcomes

24 citations , June 2021 in “Journal of the European Academy of Dermatology and Venereology”

Use specific tools to measure quality of life in alopecia areata patients and improve future treatments.

research Outcome Measures in Cutaneous Autoimmune Disease: Dermatomyositis and Lupus Erythematosus

2 citations , January 2006 in “Technical report”

The document concludes that better tools are needed to measure skin disease severity in dermatomyositis and cutaneous lupus erythematosus, and introduces the DSSI and CLASI as reliable instruments.

research A new self‐reported measure of disease severity of scalp hair loss in alopecia areata

1 citations , June 2020 in “British Journal of Dermatology”

The new measure helps understand the personal and emotional impact of hair loss in alopecia areata patients.

research Development of the CLASI as an outcome instrument for cutaneous lupus erythematosus

52 citations , March 2007 in “Dermatologic Therapy”

The CLASI is a reliable tool for measuring the severity of cutaneous lupus erythematosus.

research Signposts to the Promised Land in Alopecia Areata

September 2022 in “Journal of Investigative Dermatology”

Patient-reported outcomes better reflect the quality of life impact of alopecia areata than traditional severity scores.

research Measuring Patient Quality of Life Following Treatment for Alopecia

8 citations , July 2021 in “Patient Preference and Adherence”

Alopecia treatments improve life quality but side effects can lessen this benefit; better use of quality of life measures is needed.

research Patient-reported outcomes following various incision techniques in breast reconstruction: an observational cohort study in China

November 2025 in “Journal of Cancer Research and Clinical Oncology”

Endoscopic-assisted surgery leads to higher patient satisfaction in breast reconstruction.

research Assessment of Alopecia Areata Disease Severity in Pediatric Patients

1 citations , March 2025 in “Pediatric Dermatology”

New tools help doctors better assess and treat alopecia areata in kids by considering more than just hair loss.

research Exploring Factors That Influence the Measurement of Patient-Reported Impacts of Alopecia Areata

April 2025 in “Dermatology and Therapy”

Significant, lasting hair regrowth is needed to improve how patients with Alopecia Areata feel about their condition.

The State of the Art in Hair Transplantation Techniques

research The State of the Art

15 citations , January 1999 in “Archives of Facial Plastic Surgery”

Advancements in hair transplantation have resulted in more natural-looking hair and increased patient satisfaction.

research Proceedings of the RAMI Intern Section Meeting, 18th January 2014

2 citations , July 2014 in “Irish Journal of Medical Science”

The meeting discussed medical findings, including benefits of certain treatments for cancer and heart conditions, and highlighted issues like poor adherence to preventive measures and skill gaps among interns.

research Patient-reported outcome improvements following scalp hair regrowth among patients with Alopecia Areata: analysis of the ALLEGRO-2b/3 trial

3 citations , February 2025 in “Journal of Dermatological Treatment”

Hair regrowth in Alopecia Areata patients leads to increased satisfaction and reduced stress.

Patient-Reported Outcomes, Provider-Reported Outcomes, And Physiologic Parameters After Gender-Affirming Hormone Treatment In Canada: A Systematic Review

research Patient-reported outcomes, provider-reported outcomes, and physiologic parameters after gender-affirming hormone treatment in Canada: a systematic review

January 2025 in “HORMONES”

Gender-affirming hormone treatments need better patient-focused outcome measurements and standardized data collection.